← Return to Antisynthetase Syndrome: Anyone else?

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nancykay1888 (@nancykay1888)

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Nov 8 2:24pm | Replies (27)

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@colleenyoung

@tstefanelli, welcome. Clearly, you are worried about your sister. She has been through so much and is still struggling with COVID infection as well as antisynthetase syndrome. I'm hopeful that @jamieray6812 and @nancykay1888 will return to share more with you.

In the meantime, you may wish to connect with others in the Transplants group in these discussions
– Lung transplants and wait times: https://connect.mayoclinic.org/discussion/lung-transplants/
– What can I Expect for my Lung Transplant Review?: https://connect.mayoclinic.org/discussion/lung-transplant/

It sounds like she needs the care of a multidisciplinary team. Might going to a large teaching hospital that has expertise in post-COVID, transplant and autoimmune diseases be a possibility for your sister? Are you able to visit her?

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Replies to "@tstefanelli, welcome. Clearly, you are worried about your sister. She has been through so much and..."

Yes she is home so I am able to help her and be with her ! She is starting the paperwork with
NewYork-Presbyterian Columbia University Hospital for the lung transplant .

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