Hello, @livefully This is such a beautiful story about your journey with Mayo Clinic and the specialist who gave you the greatest gift of hope with that rock…to believe. I have tears and goosebumps. I share your overwhelming sense that everything will be ok when I’m in the hands of the incredible medical teams at Mayo Clinic. I never lost one moment of sleep once I was delivered safely into their hands. The collaboration between doctors and departments, achieved with a sense of camaraderie instead of chest thumping, is truly special. It gives us the best of the best all working together to find solutions for a positive outcome.
As for giving all the credit to your amazing family, doctors and therapist, you do yourself a disservice because as much as they lifted, supported, and carried you, your own sprit of endurance kept you going through years of adversity. You’re very strong and resilient and need to realize how capable you are. And as for the books…I hope you give that some consideration. You’re a powerful writer.
I’m sorry that I can’t help much with personal experience with Jacksonville, My campus is Rochester. But feel the same way you do about it being a mini vacation. I had to relocate there with my husband for 4 months with my transplant. So we got very familiar with the campus and the beautiful city and visit now, every 3 months. I’ll be heading there this Monday for a full day appointments and tests to celebrate my 2nd re-birthday. ☺️
This is a link to our Connect discussion group about Jacksonville.
https://connect.mayoclinic.org/discussion/lodging-in-jacksonville-fl/
https://www.mayoclinic.org/patient-visitor-guide/florida
When is your next visit to Mayo?
Thanks for your reply Lori. Sorry to just be getting back to you. I had a rough go of it earlier but am doing better now so back to checking this site. It's so nice to connect to people who "get it"!! Yeah, I can't speak highly enough of my Mayo team. They've been working with me and I just started the SCD diet under them in addition to the elemental drinks I started a few weeks ago and supplements and am doing so much better. Its such a relief to finally have medical folks to turn to and be able to say "help" or "guidance please" and they are there and get it! Just a huge huge relief!! Thanks also for the encouragement. Maybe I should do some writing. Something to think about isnt it...
Im headed back to Mayo soon so many thanks for the links to the discussion groups about Jacksonville. Very very helpful!!!
I hope your Mayo trip was wonderful and a very very happy 2nd re-birthday to you!!!!! Glad you are for your encouragement sure brightened my day. 🙂