← Return to Elevated diaphragm causing COPD type symptoms

Discussion

Elevated diaphragm causing COPD type symptoms

Lung Health | Last Active: Aug 31 7:57am | Replies (35)

Comment receiving replies
@nla4625

Hi Kevin, Thanks for keeping us posted. I learned something really interesting the other day from a question I asked the facebook group. I've always been pretty laid back and never experienced anxiety before; thus, it's been puzzling to me that I'm grinding my teeth and need to order and wear a mouth guard to protect them. Several people (all of whom had paralyzed diaphragms) said they had experienced anxiety that disappeared after they had plication surgery, pacing surgery, or a nerve graft that helped them breath better. One of the members, a retired PA, said breathing problems resulting in too much C02 in the body cause anxiety. It's the flip side of what you mentioned. Anyway, she said increasing the times throughout the day I used my Breather or did other breathing exercises should help...so time will tell. It sounds as though you're well on the road to having a diagnosis, which for me was always a good feeling, whatever the diagnosis might be. I always hated not knowing. Are you seeing a thoracic surgeon? Since a paralyzed diaphragm is pretty rare, many PCPs and even pulmonologist don't seem to know much about them and people don't really get good advice until they get to a thoracic surgeon. It sounds as though you are being tested at a major medical center, so maybe that isn't true in your case. Take care! Nancy

Jump to this post


Replies to "Hi Kevin, Thanks for keeping us posted. I learned something really interesting the other day from..."

Hi Nancy,
No I haven't seen any thoracic surgeon or other specialists yet. My family doctor introduced me to a pulmonary doctor and she connected me with Torrance Memorial Hospital for a sniff test (done) and a CT scan (next week). That's all !
My best hope is that they will introduce me to some breathing techniques or physical therapies first before any kind of surgeries. Based on what I've been reading so far, the possible surgeries would be a nerve graft applied to a phrenic nerve, or diaphragm muscle replacement surgery, or a phrenic neuropathy, or a diaphragm pacing, or plication surgery.
There are so much to learn and I'm a bit overwhelmed right now, but gradually I'll gain more useful and essential knowledges about this rare disease.
BTW, I also have a rare condition called TGA (Transient Global Amnesia) for 2 decades now. For a person to have 2 rare conditions, I can't help it to wonder "why me ?" LOL. But I'm trying to accept and deal with these physical problems rationally and calmly since I have no other choice. That's life, isn't it ?
Thanks. Kevin