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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@tfritschy Teresa and @lindaaz Linda and @afcardieri Fillis Hello and Welcome to our Connect Forum! We are so glad you found us! You will find our group a support on our shared journey with an exchange of our experiences and the information we have gathered. We are NOT doctors but if you read past pages of our post you will learn a LOT about MAC and Bronchiectasis .. unfortunately sometimes more than many doctors are aware of. As you educate yourself .. you MUST become your own best advocate! Remember .. if you will read a 300 page book for pleasure .. isn't it wise to read 25 or 50 pages of this Forum to help learn about our shared MAC disease? Hope you make the effort to read those pages .. it will pay off!
I am answering you on our main discussion page:
– MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS
https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/ ..( that is page 1 .. you can go to "Last" or wherever) . In this thread, you’ll find a wealth of information from an incredible group of knowledgeable and supportive members.
I am answering you there so you will perhaps get more responses. Come on over. Introduce yourselves and ask anything after you have read through the past pages and educated yourself to our shared disease. Hope you find these pages helpful! Hugs to all! Katherine
Replies to "@tfritschy Teresa and @lindaaz Linda and @afcardieri Fillis Hello and Welcome to our Connect Forum! We..."
Dear All .. IF SOMEONE DOES THIS .. PLEASE LET US KNOW THE RESULT so we can add it to our Forum notes as a good resource for our Members!! Hugs! Katherine
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@bschaper2 Hi
Barb. You can go to the CDC website and find out if you can send a water sample
for testing. I feel like you could. I once sent in a small jar of house dust to
them to make sure it did not contain asbestos. It cost around $30.00 (or less)
We were doing a major remodel on our home in Az on a house built in 1951. All of
the ventilation pipes were wrapped in plastered asbestos. The report came back
negative and they listed what they did find. It was mostly cellulose from the
very old carpet that was in there. Let us know what you find out. - Terri
M.