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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Feb 17 4:40pm | Replies (186)Comment receiving replies
@jaygats, welcome back. @bakergirl talks about getting good care at Mayo Clinic in Arizona with both a doctor and vocal therapist. See the exercises and recommendations she posted here: https://connect.mayoclinic.org/comment/241178/
Might traveling to AZ be a possibility for you?
I'm also tagging @tkubby @mjahall @kimduncan1211 @cbcbasket @wlesikar @arlinebringhurst @sj1950 @jnttaz @joanna48 to see if they have LSN physician recommendations for California.
Welcome @greenbergman. In an earlier message, @johnbishop shared this link.
- Laryngeal Sensory Neuropathy How to Diagnose & Treat and its Relation to LPR https://www.wipeoutreflux.com/laryngeal-sensory-neuropathy/
Has the root cause of your chronic throat clearing been determined?
Replies to "@jaygats, welcome back. @bakergirl talks about getting good care at Mayo Clinic in Arizona with both..."
Thanks @colleenyoung . A theory (just a theory) is a damaged nerve caused by that flu/cold years ago. The ENT is insisting it's reflux or post-nasal drip or both. But meds don't bear this out. A neurologist diagnosed it as a vocal motor tic. (But doctors tend to diagnose what they know.) Neither Gabapentin nor Klonopin helped, though.
And the psychosomatic aspect complicates it.
(I've also noticed that wearing masks can bring it on.)
Sorry I can't be of help since I live in Ohio. Ohio State gave me the most help by prescribing Tramadol and Lyrica to help control my chronic spasmodic cough. Then after testing diagnosed my problem as Laryngeal Sensory Neuropathy. I'm about 80% cured but the remaining percent can still wreck havoc with my life. I wish you luck in finding a doctor in California who can help.
@colleenyoung, thanks for tagging me. I'm in TX though so no CA recommendations. A quick update on me though (in case anyone else has noticed this)... I take Tramadol every day for something else AND I've worked from home for 16 months and haven't had one cold the whole time. My throat issues are about 95% better. Not sure if it's the Tramadol drying up drainage and reducing sensitivity along with no colds but I have to wonder if this has given my throat time to heal.
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thanks, @colleenyoung, yes AZ is possible, ideally of course if those tagged can recommend someone between San Diego and Los Angeles that would be ideal.