Colorectal cancer stage 3c: Need positive feedback

Posted by dianemarcia @dianemarcia, Jan 3, 2019

OK so I need chemo..stage 3c. Scared to death. Need positive please. Had surgery to remove mass. Found 8 lymph nodes out of 27 that were positive. Any advise?? Please! Dr. Said had to wait for body to recover from surgery b 4 chemo

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@margreet

What means BFRA, I have never heard of that, sorry for my ignorance.

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That is the type of cancer ! Stage 4 aggressive

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I ish you all the best ! Prayers for you

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@colleenyoung

Margreet, BRAF refers to a gene mutation.
Here's a definition from the National Cancer Institute https://www.cancer.gov/publications/dictionaries/cancer-terms/def/braf-v600e-mutation
BRAF (V600E) mutation
"A specific mutation (change) in the BRAF gene, which makes a protein that is involved in sending signals in cells and in cell growth. This BRAF gene mutation may be found in some types of cancer, including melanoma and colorectal cancer. It may increase the growth and spread of cancer cells. Checking for this BRAF mutation in tumor tissue may help to plan cancer treatment."

Did they check for this mutation when you were diagnosed?

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I have no idea . My tests came back BRAF

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@margreet

I don’t know, have to ask my Oncologist, was diagnosed with stage 4 Coloncancer in January 2018., had surgery, colon resection, liver resection, and part of my pancreas removed, followed by an aggressive chemo treatment, at the moment, 2 years later I am still in remission. Except they discovered a cyst in my left kidney that is slowly growing, will have an MRI in two weeks to see if my left kidney should be removed or remove the cyst by Ablation. They don’t know if the cyst is cancerous or not. I am now 82. In good shape , swim in the lake, live independent don’t feel anything abnormal . I am getting a bit anxious about the results of the MRI.

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Margreet, I can understand being a bit anxious. Here is more information about kidney cysts from Mayo Clinic
- Kidney cysts https://www.mayoclinic.org/diseases-conditions/kidney-cysts/diagnosis-treatment/drc-20374138

As you know, sometimes treatment isn't necessary. Scroll down the page on the link above and you'll see a list of questions to ask your doctor. I think they might be helpful as you prepare for your appointment.

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@colleenyoung

Margreet, I can understand being a bit anxious. Here is more information about kidney cysts from Mayo Clinic
- Kidney cysts https://www.mayoclinic.org/diseases-conditions/kidney-cysts/diagnosis-treatment/drc-20374138

As you know, sometimes treatment isn't necessary. Scroll down the page on the link above and you'll see a list of questions to ask your doctor. I think they might be helpful as you prepare for your appointment.

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Thank you for the information. I don’t have any symptoms as far as I know. I have had CT Scans every 3 month over the last 1.5 years and the cyst has been growing very slow up to 2 cm. I am now under care of a Urologist and will have an MRI done this coming Wednesday , July 14.will hear the results a week later. I am 82 years old and in remission for my Colon cancer, no medication. and in good condition, live independently, so I hope no treatment is necessary. It was nice to read more about the options and questions I can ask, thank you so much.margreer

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Hello, I had a 30mm mass removed the doctor told me I had 2/33 lymph nodes of cancerous cell. He want me to think about doing chemo for three mths. he said no rush but it will help the chance of anything growing back. I’m thinking I don’t know yet.

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@wilcy

Had over 20 lymph nodes removed 8 years ago! Still here! Stage 3

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Thanks for the positive post. I’m also stage 3; had 24 lymph nodes removed- 14 are cancerous.
Having my 4th round of chemo today.
Did you have radiation treatments?

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Great that you’re doing good! How often do you do Chemo?

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@cjay

Thanks for the positive post. I’m also stage 3; had 24 lymph nodes removed- 14 are cancerous.
Having my 4th round of chemo today.
Did you have radiation treatments?

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No Radiation. Doctor just recommend me to get three mths. Of Chemo.

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Letting go of fear. Listening to the sounds of birds and looking at the tall trees in the woods.

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