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Peritoneal Cancer: Anyone else?

Cancer | Last Active: 3 days ago | Replies (82)

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@colleenyoung

Hi Dor, I add my welcome. I noticed that you wanted to post a link to an essay you wrote for StatNews with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Male doctors said my ‘female’ cancer was incurable. Then a woman took command and gave me hope https://www.statnews.com/2018/10/04/peritoneal-cancer-women-men-doctors/

It is a beacon of hope to hear you say that you're "savoring my exodus from cancerland." Many cancer survivors, even when there is no evidence of disease (NED), still don't feel like they can truly exit cancerland. There's the regular checkups and scanxiety, and every medical symptom makes one wonder... What is your tip to others to embrace the exit?

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Replies to "Hi Dor, I add my welcome. I noticed that you wanted to post a link to..."

Thanks for posting that essay Coleen. Since I wrote it, I have heard from families all over the world desperate for information about treating this rare form of peritoneal cancer. I wish there was some site that they could turn to for an up to date guide about treatment. Like everyone else, I feel dread every time I have to go for a scan or a blood test for CA125. I simply think in terms of one step forward, fall down, get back up. So far it’s been an incredible relief when the results come in. Meantime, I savor the present.