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TS-HDS Antibody and Small Fiber Neuropathy
Neuropathy | Last Active: Nov 13, 2023 | Replies (156)Comment receiving replies
Hi everyone! I hope this morning starts you off with calm nerve fibers and some relief, even if small. I’m excited (I know, weird choice of word) that there is a group specifically for this rare type of SFN! I was just dx about a month ago and already felt alone as not much research is out there on it! I am fortunate enough to have a Neurologist that has written some papers on it and I would be happy to share! Anyone finding info on why this antibody does what it does?
Also, does anyone in this group happen to have any metal implants in their body? I have a titanium dental implant and my symptoms started 8 months after placement… I just was dx with an allergy to titanium sulfate… I know metal can do crazy things to the body. It’s a side theory I have on a possible “cause” but I may be going down a rabbit hole… any thoughts would be greatly appreciated.
Replies to "Hi everyone! I hope this morning starts you off with calm nerve fibers and some relief,..."
I'm getting a melisa test to test for a reaction to various metals. Titanium does well with this test where as the skin patch test does not work with Ti. Did you have this test also know as a LTT test it is out of a lab in Chicago. I got SFN 1 year after a hip replacement. I did have a very high rh factor too.
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Hi Carly - @lmcfm1 @lilotter @auntiegen @bogibus @helennicola @laureen8844 all have the TD-HDS antibodies and neuropathy and may be able to share some suggestions with you.