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@livefully You’ve certainly been through the wringer over your lifetime with ‘belly wankers’ as our family calls anything to do with guts and entrails…
Thank you for sharing your journey with us!! Your experiences, diverse diagnoses and the way you’ve handled all of the life challenges with such aplomb shows a testimony to your strength and resilience. You truly deserve a gold star for your wonderful sense of humor through all of this.
I’m so happy you found the Mayo Clinic. It really is a medical organization unlike anything else and sets the standard of health care. It’s a shame not every medical experience is as positive. The collaborative medicine and integrated medicine approach to treatment and patient well being is the pinnacle of care. I call it being Mayo-naised. ☺️
Every time I return to ‘the mother ship’ the calming, quiet sense of assuredness from my doctors and the entire medical staff lets me know I’m in the best possible hands and there is hope.
I’m also happy, as are others, that you’ve found Mayo Clinic Connect. Yes, most of us are patients or caregivers looking for answers, a shoulder to lean on, encouragement and that all important word again, HOPE.
It’s great you’re perusing all the groups because the experiences and insights from your life journey, are of great value across the forum, along with your great sense of humor and positive attitude.
Which campus is your Mayo provider?
Replies to "@livefully You’ve certainly been through the wringer over your lifetime with ‘belly wankers’ as our family..."
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I go to the Flordia campus. I can't speak highly enough of the sleep, neuro, integrative, ENT, and speech therapy departments there. They are hands down amazing. On my first visit, during the last meeting of the last specialist (I saw all 5 departments on my first visit there..), at the end of the meeting with him, he ended it by giving me a really beautiful pep talk then putting a rock in my hand. When I turned it over it had the word "believe" etched into it. He said that on the days that are rough, and I struggle to believe things will physically get better, know that he and all of my care team at Mayo will believe for me. I about cried. That's when I knew that Id found really great care. That and the fact they all listened to me and worked collaboratively to problem solve was stunning. It really was a beautiful experience that gave me hope. It felt so great to feel hope. Yeah, I've carried that rock in my pocket every day since.
I'd like to claim I'm strong and resilient but truth is, it's my Mom and Sister and my physical therapists who I've worked with for 27 years that have carried me. If it weren't for them, I'd have given up a long, long time ago. I could write a book about all of the stories and in each story, you would see that it's those folks that have pushed me on. I can see my Grandmother smiling and whispering to me "It was Providence my dear. He knew what you needed.". Id have to agree and its at those moments that I have to whisper a thanks to God.
Speaking of Florida, its fun to go there cause its like a mini-vacation in a way. If you go to the Mayo there, do you have particular places you recommend staying at? We've tried some VRBOs so far and enjoyed one of them a lot. Is there a thread/posts on places to stay for the FL one? I have looked but havent found one so far.