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lurxh (@lurxh)

Sudden PVCs with congenital heart disease

Heart Rhythm Conditions | Last Active: Jul 5, 2021 | Replies (3)

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Hi @lurxh and welcome. PVCs can be disconcerting. You're wise to persist with follow-up given your history with CHD.
As per this article from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/premature-ventricular-contractions/symptoms-causes/syc-20376757
"If you have occasional premature ventricular contractions, but you're otherwise healthy, there's probably no reason for concern, and no need for treatment. If you have frequent premature ventricular contractions or underlying heart disease, you might need treatment."

I believe it may have been this expert blog post and video that you read.
– Congenital Heart Disease Arrhythmias March to Their Own Beat https://connect.mayoclinic.org/blog/congenital-heart-disease/newsfeed-post/congenital-heart-disease-arrhythmias-march-to-their-own-beat-2/

I'd also like to connect you with @tplefka @eileena @kenny48 @sue225 and others to see if they may have some suggestions. My suggestion would be to keep asking questions. You are worried and your concern needs to be taken seriously.

What is the next step? Will you be monitored with a holter again?

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Replies to "Hi @lurxh and welcome. PVCs can be disconcerting. You're wise to persist with follow-up given your..."

The cardiologist I saw on June 26th is a specialist in adult chd. He did seem a bit nonchalant about the whole thing, seemingly blaming my history of anxiety. I am giving him the benefit of the doubt until I at least get my holter results. I was told I would receive a call by today but I am still waiting.

As I stated I didn’t have any noticeable PVCs while being monitored, although two days later an episode began lasting about 6 hours with near constant fluttering. When it finally subsided I was left with what felt like a knot underneath my sternum with a sharp pain associated with it. It is gone now but as I am writing this I feel the fluttering slowly coming in and out.

I am also assuming that the ER doctor who diagnosed the PVCs is correct. While discussing this with other people I became wary when they asked about the pattern. With it being every other beat, second, third, etc. I honestly didn’t know how to answer because to me it just feels like a chaotic fluttering with no discernible pattern. Sometimes these flutters last about 8 seconds, subside for maybe a minute or two and then come back.