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Transplant anti-rejection medications. What's your advice?
Transplants | Last Active: 1 day ago | Replies (324)Comment receiving replies
In reply to @jolinda
Thank you all for your comments regarding our meds we need to take. My transplant was October 2020. As of now I am on 6mg of
Tacrolimus in am and pm. I was on everolimus I think 6mg am n pm.
I was taken off zotress in middle of April do to horrible case of
Mouth soars, did not eat 23 days, only protein drinks, anyway
I had surgery in early June which is also why I stopped cause of
Healing. Thursday, my doctor wants to put me on sirolimus, once
A day, but it has same side effects that I am very nervous about.
I don't understand why I am taking so much tacrolimus! Other than
That feeling better from my hernia repair every day.... have a great day
God bless you all....
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You take 6 mg of Tac in am and pm? My transplant was in August 2020, I now take 3 mg of Tac am and pm, it was lowered in April from 4 mg am and pm. However, Mycophenolate dosage was doubled to 1,000 am and pm.
I’m very strict with taking both on a completely empty stomach. I’ve read that’s the best way to metabolize it fully. I’ve also done thorough research into all herbs, tinctures, etc. that interfere with its metabolism, which includes many common herbal supplements unfortunately. So, I take vitamins, Omega3, and ALA for neuropathy and that’s it.
I have terrible tremors, although my liver doctor doesn’t think they’re due to Tac. But, I want to keep reducing it and see. All the anti rejection meds are so harmful to our bodies, so I hope Sirolimus works for you and you can reduce Tac!