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Worried about my husband coming off the ventilator

Neuroendocrine Tumors (NETs) | Last Active: Aug 2, 2021 | Replies (13)
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@cmstrachota

My husband is in hospital with CIDP syndrome and is on a ventilator and they are treating him with steroids. He is doing most of the breathing on his own but trying to wean him off. He has lost all mobility.
Is it worth getting a second opinion from mayo?

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Replies to "My husband is in hospital with CIDP syndrome and is on a ventilator and they are..."
Colleen Young, Connect Director | @colleenyoung | Jul 5, 2021

Hi @cmstrachota, it is always worth a call to Mayo Clinic. Here is the contact information for all three campuses http://mayocl.in/1mtmR63

Mayo Clinic experts will review your husband's medical records, history and current situation and be able to tell you if it is possible to move him or if he is receiving the same care that they would offer.

Which Mayo location might be closest for you - MN, FL or AZ?

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Colleen Young, Connect Director | @colleenyoung | Jul 5, 2021

@cmstrachota, you may also wish to connect with other members who have experience with CIDP in this discussion group:
- CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) https://connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy/

This must be very scary for you. How are you doing?

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