I've been reviewing all of the comments in this discussion because I haven't been here for a while. @artscaping You said the price was high for a month or so before you hit the donut hole? For me, it's longer than that. I started on Tymlos in March and the price is still high for me now. I know it will drop at some point, but it hasn't yet. I'm due for a new prescription now but I am delaying it for a couple of weeks.

I am delaying my next month on Tymlos because I am having a lot of fluid retention, particularly in my belly. I have heard others refer to it as having a "puffy belly". Some, like me, are also experiencing fluid retention in their feet and lower legs. My physician has not heard of this so I checked with my transplant team to see if it was possible that it was from anything there and they said no. I did also check with my Tymlos "clinical educator" and she too had not heard of this side effect! Both doctors have suggested I see my PCP but after having heard of numerous others on Tymlos experiencing this I am just assuming that is the cause. I plan to take two weeks off of Tymlos to see if that makes a difference. Right now my pants (even my underwear) are all tight, as are my shoes. Despite neither my endocrinologist nor my clinical educator having heard of it, I think in a case like this where many people have commented on it that the anecdotal evidence is very persuasive.

Has anyone here had this problem? I guess it's more of a nuisance than anything but still, my clothes don't fit! Other than this, all other side-effects subsided in a short amount of time. This didn't start until about 3 or 4 weeks ago. If that's my only problem I will stick with Tymlos because the results I have heard of have been very good. I just dread deciding what I will do when I get off of Tymlos.
JK

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