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Undifferentiated Connective Tissue Disease

Autoimmune Diseases | Last Active: May 9, 2023 | Replies (75)

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@yellowdoggirl

I have this! Diagnosed about 2 years ago after another 2 years of visits to rheumatologist, head of the Lupus program at our local Ivy League university medical school.
It started with cutaneous Lupus which remitted with hydroxychloroquine, still taking it. Recently dosage was increased and that helped a lot.
Not fond of that, but it worked for me.
Nobody I know ever heard of it and they seem to think I made it up! Now I don't speak of it, just live my life grateful to be relatively symptom-free.
My best wishes to you! I hope you have a great rheumatologist whom you trust. That's key!

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Replies to "I have this! Diagnosed about 2 years ago after another 2 years of visits to rheumatologist,..."

Thank you Yellow Dog Girl!! It’s nice to know someone else has this and that increasing the dose helped you. I am working with a highly regarded rheumatologist. The hydroychlorquin dose was suppose to be 400 but I started with 200 because I had developed a rash after taking 88 of thyroid medicine but was ok on 44. Anyway after 2 months and no rash or improvement I increased the dose to 400 and will try this for 3 months. What dose worked for you? FYI-the doctor said 300 is the correct dose for my weight/height.