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Undifferentiated Connective Tissue Disease

Autoimmune Diseases | Last Active: May 9, 2023 | Replies (75)
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@cherylmcg

I’ve diagnosed w/UCTD and have been taking hydrochloriquine for 3 months with no improvement. I started st 1/2 dose so I am suppose to go full dose for full 3 months to rule out Sjornes disease. I also was diagnosed with Charcot Marie Tooth and hypothyroidism. My RA blood was positive but not for all categories, C3 & C4 levels are low as a WBC counts, and swollen salivary gland, hair loss, fatigue, painful sinus, dry mouth/skin. The good news is I’m not in much pain! Another weird rare disease to add to the list……

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Replies to "I’ve diagnosed w/UCTD and have been taking hydrochloriquine for 3 months with no improvement. I started..."
Becky, Volunteer Mentor | @becsbuddy | Jul 8, 2021

Good morning @cherylmcg You sound so positive even though you’ve got this long list of other diseases. I’m very glad glad you’ve met @yellowdoggirl. She can probably be very helpful to you. . I wanted to ask though with the other diseases that you have like Charcot Marie tooth and hypothyroidism are they managed pretty well or does everything get in the way of everything else? I’m really glad that you don’t have much pain!
You are going to increase your hydrochloriquine today—will you let the group know how you do?

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