Your liver team should have a social worker on staff. When I was preparing for my liver transplant they were immensely helpful. During my hospital stay she visited with me daily (I don’t have family in the area and it was during Covid). And now she still checks on me when I go in to see my liver doctor. In fact, during the “interview” process you’ll go through to get ready for your transplant, you’ll find the entire liver team very approachable and happy to answer your questions.

Your hospital may also have a support group you can join now. We have people join ours prior to their transplant in order talk with us and ask questions.

This discussion on Connects and others in the liver transplant group are very helpful as well.

Be sure to eat well and walk and exercise as much as you can within your limitations. Talk with your doctor about your limitations if you’re not sure. The more in shape you are before your transplant the better off you will be.

I posted these articles here previously, they’re quite informative. The other doc I put together for our social workers as they’re putting together resources and tips from us transplant patients to help new patients such as yourself.

Best wishes for your new journey!