Lindam272.... I am out of town til mid week....when I get home I will try to locate the comments. On the NJH CT scan.
I have had varying sized nodules from 10 years ago which at that time according to the Fleischner ...sp ...guide did not require follow up. The guide was printed right on the report and can be googled ( This subject was brought up awhile ago on this site)
So please await more from me.tdrell

Hello, could the nodules be due to the type of bronchiecstasis you
have?
 

NJH said I do not have bronchiecstasis....the main reason for my 2 year duration cough and MAC grown from culture on bronchoscope ( locally) was from silent aspiration while awake and asleep from my Gerd.
In SE Wisconsin we have NTM in city water pipes....soil...aerosolized.
My first culture upon arrival at NJH grew NTM on the first of 3 phases....Not in 2nd or 3rd phase.....
Cultures from day two and 3 that I produced.....grew NONE even after several months.
My view is that on the first day I still had NTM in my stomach (from drinking it in Wisconsin....which then got aspirated into my lungs and on first culture done at NJH....a few could still show up on initial culture .
I now drink bottled spring water and am trying to loose weight ( another recommendation) and other measjures for the Gerd.
As previously stated....they gave me a methocholine test...the gold standard to check for asthma...which after 30 years of treatment I don't have....but I have chronic allergic rhinitis ( hence lots of dripping mucus from it...I see allergist at home....
They did a sleep study ( local bronchoscope showed obstructive condition which I do not have obvious symptoms of) which showed I need CPAP since I had 47 apneic events an hour. So since April I use the CPAP machine nightly.
So....long answer....I am doing "ok" and thankful I have Medicare and great supplement.
Also agree re need for update diagnostic machines....Cat scans done at medical center....brand new 200 bed hospital part of Aurora systemwisconsin
Biggest provider and then 3rd at NJH.
Tdrell

Terri, any way you would want to move from that area? You will have to be
careful not to re-infect yourself there. Learned from that seminar that many
people who come down with NTM infection again is due to catching it in the same
places they caught it before. Did you see my post about hot water heaters being
a major source of MAC bacteria? Did learn also that the MAC tends to be worse in
certain regions.
 

Hi Terri. I am so glad that you do not have bronchiecstasis. That is one big blessing to be grateful for right there.

Lindam272....I found an excellent site on Pulmonary nodules by going to "My.clevelandclinic.org" site and putting Pulmonary nodules" by the search icon tdrell

Thank you Terri, I will check it out.
 

Wind walker....no thoughts of moving from here....I predict that at some time in the future...NTM. Will be found in every state.....none the less I take precautions such as not drinking from water or ice made by refrigerators....drinking spring water....leaving door open when showering not inhaling steam....no longer going to YMCA to use their warm pool or hot tube....water heater set at 120..I will get a repeat CAT scan and 3 separate NTM cultures done by NJH....a year from the ones done in 2017.tdrell

Terri, all sounds good! I gave up on all public pools and hot tubs of any
kind. Not just because of MAC, but because I get bad reactions from chlorine,
always have. Learned at the conference that chlorine actually concentrates the
MAC.
 

@tdrell Hi Terri, when you say "In SE Wisconsin we have NTM in city pipes....soil....aerosolized", did you mean this could be true with the entire state? I've lived in Madison for over 30 years and have always been drinking the tap water. Should I be worried about this problem as well?