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← Return to rituximab infusion for rare lung disease
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rituximab infusion for rare lung disease
Lung Health | Last Active: Jul 5, 2021 | Replies (18)Comment receiving replies
Hello, I'm back, just had to run out for a bit. Ok, I guess I can be a good do bee, lol I am so sorry that you have had to go through so much, I hope your feeling better and I am not bugging you. I so appreciate all your information and the more information from someone that has gone through these infusions sure helps me from jumping off the ledge. With that said, I have to go back in 2 weeks for another infusion for 8 hours and then a CT and Pulmonary test 6 to 8 weeks after that. I have been on Leukine, 500 mcg in haled and it is just not making any progress. So I need to suck it up and be a big girl and call my Doctor. š . I sure am glad I have been able to connect with you. I will let you know how I do when I'm done with my 1st. infusion. Thanks again for all your help. Sincerely, Teammayo1
Replies to "Hello, I'm back, just had to run out for a bit. Ok, I guess I can..."
@teammayo1 Oh my gosh, I laughed out loud with the do-bee! As in donāt be a ādonāt beā. That was from Romper Room! Yikes, flashbackā¦.
LOL. Ok, yes, be a Do-bee and make that appointment. Iām sorry the Leukine treatments didnāt help as much as expected.
I think your doctors are on the right track with the Rituximab. As discussed before, it inhibits the production of the B-cells and can help calm the inflammation that causes your reaction. So it could be a valuable asset in getting your lung condition under control, though donāt expect it to work overnight. It is not immediate.
Iām sorry I didnāt see this response right away. When you reply to a specific conversation itās best to hit reply in the actual comment box. That way the message will send a notification to the intended person. Or when replying post it to @loribmt or any other member using their @-name. That will insure it gets a direct response. ☺️
Iām 100% fine now and living proof of ābetter living through chemistryā. Youāre definitely not bugging me at all! Iām here as a mentor to help or offer encouragement any way I can. We become family. ☺️
Iāll be looking forward to hearing about your experience. When is your first appointment?
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@lphillips @jrt26 @cag may also have some experiences with Rituximab infusions to share. @danab can tell you more about the infusion center at Mayo Clinic in Arizona to help you prepare, too.