Colleen Young, Connect Director | @colleenyoung | Feb 15, 2017
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
It is very common for kidney disease and peripheral neuropathy to come together. The kidney inability to function seems to throw something (probably just protein) at the nerves which impacts their sensitivities. There is no "one size fits all" here, but I think kidney malfunction (seen in the GFR rate...mine is 48 now... from kidney damage from hereditary) is the most common. When the kidney lets protein get into the blood stream, the protein dies at some time and must be deposited some place. Usually this is in nerve tissue, brain or organ or bone or whatever. When it is the brain white matter, things can impact all over the body. Alzheimers, etc. Soccer and football players get this all over the brain from repeated bumps, according to the University of London. There are so many things that can bring about PN.
Anyway, two things. Eat the best kidney protection diet you can find, and get lots of easy exercise. Oh, and get your "Serum Free Light Chain" and your "24-hour urine collection" tested about every tear or more often. Not just the regular plasma protein test. That is not sensitive enough.
Let us know how you do.
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
Hi my name is Patti& I had a kidney transplant in 2006. Wonderful & my blessed angel next door donated one of her kidneys to me. I have also had liver resection surgery at the Mayo in 2000. All part of having Polycystic disease. I had my right kidney removed on the side they put my New transplanted kidney nbut still have a very enlarged left diseased kidney. I have a lot of cysts all over too. I had a MRI on my back & they found a 3to 4 mm tumor on my nerve root. I have a lot of pain going down my legs @ down low of my back. Ca I possibly have this peripheral neuropathy?
Thank you for listening.
Patti
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
Sometimes growing old is not the bowl of strawberries it is supposed to be. Just a couple of hours ago I sat in my big overstuffed Lazy Boy for a few. Then my left foot started burning with PN. That lasted about two hours, but it was just awful across my left arch. *&%^^%$
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
If you are concerned about peripheral neuropathy, you may want to check out the discussion, "Anyone dealing with peripheral neuropathy?" You can find that discussion here, http://mayocl.in/2aWCYXq.
In that discussion you will find a large discussion with a lot of members discussion peripheral neuropathy who may be able to address your questions about peripheral neuropathy.
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary@trish602@trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
My husband - age 88 - was diag. with Stage 3b in early 2020. In November, while being given a Knee-jerk reflex test it was noted that he had no reaction in either knee. I've been trying to read up on CKD - especially relating to the elderly - and just discovered that Peripheral neuropathy can be connected to CKD - so I'm guessing that could be the case in his regard. Lately he has come close to falling for no apparent reason (fortunately something nearby to catch himself on). Is there anything special I need to watch for? Thank you.
My husband - age 88 - was diag. with Stage 3b in early 2020. In November, while being given a Knee-jerk reflex test it was noted that he had no reaction in either knee. I've been trying to read up on CKD - especially relating to the elderly - and just discovered that Peripheral neuropathy can be connected to CKD - so I'm guessing that could be the case in his regard. Lately he has come close to falling for no apparent reason (fortunately something nearby to catch himself on). Is there anything special I need to watch for? Thank you.
@billchitwood Welcome to Mayo Clinic Connect. while we are not medical doctors,and cannot diagnose issues, we are fellow patients or family members/caregivers who share our journeys.
It must be very concerning for you to see your husband's decline in moving around, and possibly falling. For me, that is my biggest fear, falling and not being able to get up [and now I keep recalling that old commercial!] There may be several reasons for near-falling, including an ear infection, sinus problems, uneven surfaces, shoes catching on something as he moves. I now use a cane in the house, and walking stick outside.
Being in stage 3b, I hope your husband is being closely monitored in his condition, not only because of being 3b, which can change rapidly, but also as he ages, how things can change. What was the response by the dr on the non reaction to a knee-jerk reflex? Ask you husband's nephrologist if the almost-falling and other symptoms should be followed up.
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Welcome to Connect, @deanna21239.
I'm tagging @oldkarl and @ujeeniack who have spoken about having CKD as well as neuropathy. And @freemary @trish602 @trish602 who have CKD. I'd also like to direct you to a couple of discussions where you can meet other members talking about kidney disease and others where they are talking about peripheral neuropathy.
- Stage 3 CKD http://mayocl.in/2kvZpbb
- Anyone here dealing with peripheral neuropathy? http://mayocl.in/2aWCYXq
Deanna, we look forward to getting to know more about you. How long have you been dealing with kidney disease?
It is very common for kidney disease and peripheral neuropathy to come together. The kidney inability to function seems to throw something (probably just protein) at the nerves which impacts their sensitivities. There is no "one size fits all" here, but I think kidney malfunction (seen in the GFR rate...mine is 48 now... from kidney damage from hereditary) is the most common. When the kidney lets protein get into the blood stream, the protein dies at some time and must be deposited some place. Usually this is in nerve tissue, brain or organ or bone or whatever. When it is the brain white matter, things can impact all over the body. Alzheimers, etc. Soccer and football players get this all over the brain from repeated bumps, according to the University of London. There are so many things that can bring about PN.
Anyway, two things. Eat the best kidney protection diet you can find, and get lots of easy exercise. Oh, and get your "Serum Free Light Chain" and your "24-hour urine collection" tested about every tear or more often. Not just the regular plasma protein test. That is not sensitive enough.
Let us know how you do.
Hi my name is Patti& I had a kidney transplant in 2006. Wonderful & my blessed angel next door donated one of her kidneys to me. I have also had liver resection surgery at the Mayo in 2000. All part of having Polycystic disease. I had my right kidney removed on the side they put my New transplanted kidney nbut still have a very enlarged left diseased kidney. I have a lot of cysts all over too. I had a MRI on my back & they found a 3to 4 mm tumor on my nerve root. I have a lot of pain going down my legs @ down low of my back. Ca I possibly have this peripheral neuropathy?
Thank you for listening.
Patti
Sometimes growing old is not the bowl of strawberries it is supposed to be. Just a couple of hours ago I sat in my big overstuffed Lazy Boy for a few. Then my left foot started burning with PN. That lasted about two hours, but it was just awful across my left arch. *&%^^%$
Hello @pkindron, welcome to Connect.
If you are concerned about peripheral neuropathy, you may want to check out the discussion, "Anyone dealing with peripheral neuropathy?" You can find that discussion here, http://mayocl.in/2aWCYXq.
In that discussion you will find a large discussion with a lot of members discussion peripheral neuropathy who may be able to address your questions about peripheral neuropathy.
I was diagnosed with Polycystic disease not for about 30 years. First with the liver -& then my kidney. Mayo Clinic saved my life!
@pkindron did you know that there is also a Transplants group here on Connect. I hope you'll join the conversations there too. Here is the link https://connect.mayoclinic.org/group/transplants/
Thank you!
My husband - age 88 - was diag. with Stage 3b in early 2020. In November, while being given a Knee-jerk reflex test it was noted that he had no reaction in either knee. I've been trying to read up on CKD - especially relating to the elderly - and just discovered that Peripheral neuropathy can be connected to CKD - so I'm guessing that could be the case in his regard. Lately he has come close to falling for no apparent reason (fortunately something nearby to catch himself on). Is there anything special I need to watch for? Thank you.
@billchitwood Welcome to Mayo Clinic Connect. while we are not medical doctors,and cannot diagnose issues, we are fellow patients or family members/caregivers who share our journeys.
It must be very concerning for you to see your husband's decline in moving around, and possibly falling. For me, that is my biggest fear, falling and not being able to get up [and now I keep recalling that old commercial!] There may be several reasons for near-falling, including an ear infection, sinus problems, uneven surfaces, shoes catching on something as he moves. I now use a cane in the house, and walking stick outside.
Being in stage 3b, I hope your husband is being closely monitored in his condition, not only because of being 3b, which can change rapidly, but also as he ages, how things can change. What was the response by the dr on the non reaction to a knee-jerk reflex? Ask you husband's nephrologist if the almost-falling and other symptoms should be followed up.
Here is an article about peripheral neuropathy from Mayo Clinic that you might find helpful https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
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