Hi and. Thank you for your response! First, I noticed my spell check is not working and I never checked m y last letter till now! If Sister Phiilomenia, my spelling teacher 5th grade from catholic grammar school could see that letter!!
This is the first time I have talked to a group on Restless. This disorder has knocked out every one who suffers from it! Physically, mentally and psychologically! I never knew what it was till my sisters said they also suffer from it to various degrees! I have no children to ask but it is the same all around. I think my deepest problem is 2 fold. First the doctors and medical personnel are very uneducated about Restless and what gets to me is the first thing they want to say is,”Are you here for pain meds”say is if your are for pain meds, “! I get so angry when his said that! I wanted to ask him if he wanted some of mine! But I held my tongue!
My last attack was so severe because it involved more that the attack! It started with a anxiety attack that I had no idea where it came from then it advanced a little because I had not slept for 31 hours and then because of being so exhausted I started next with the Restless attack and when it stayed around for a few hours I was taken to the emergency room where the doctor wanted to treat me for everything other than the attack! After an hour and things were calming down, I ask him if he knew what restless leg was and how to handle it, he said no! I have had them for a while but about 6 months ago, the pain center advised me that I could not stay on both pain webs and anxiety meds because of a recent letter from the CDC where they lower the breathing so the doctor could not continue with both so I had to pick one! I have recently was told that there is a antihistamine that they are using for anxiety. I have used that for the last month and I believe it is working! Any medication I can take off the medication list is wonderful!!. Now I got to work on the rest! I will try what the doctor suggests! There is nothing that has helped for any length of time and I seem to be on a roll to manage the worst parts and that is my current list and sticking to the times and does! It involves sinamet, CARBIDOPA and 3 strict courses of HORIZANT. If I miss a does at the specific time, I will suffer! I have been disabled from a accident for approximately 30 years and the only thing that i can depend on showing up is my Restless Leg!! I have started some severe tics with my shoulders, arms.and face. When they start, I know that I will get a visit from my tooth fairy with another attack! That little fairy works double duty with me! I have type 2 diabetics, thyroid , iron anemia and age wide disorders! I pray big time for relief from this nightmare but for now I will continue attaching a little note with my medication list to hand to the doctor explaining restless!! Don’t expect the Doctor at the hospital to know what the symptoms are or how to handle it! God bless all the medical personnel for all their work they have done for us the year a 1/2 year. I don’t know where to start with education on RLS but it’s not over till the fat lady sings! Thank you !