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Langold (@rarelybees2889)

Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Nov 15 12:17pm | Replies (135)

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Hello, I am new to this…I am a parent of a 16 year old boy who has had a lifetime of GI issues nobody has been able to diagnose or help and now nearly 2 years of debilitating chronic fatigue and brain fog. He has ben seen by MANY Dr.'s at children's hospital. He has been tested for all sorts of things: thyroid, cardiac, allergies, autoimmune, Lyme's, rocky Mountain spotted fever, infections disease for something picked up while traveling internationally…you name it. Nobody has been able to figure out what is going on or how to help him.
Any ideas? We need all the help we can get?

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Replies to "Hello, I am new to this...I am a parent of a 16 year old boy who..."

Hello @abrown2, Welcome to Connect. As a parent, I can't imagine the stress and pain your son is going through while all the different doctors have been trying to figure it out. Have any of the doctors mentioned the possibility of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)? The symptoms you describe sound similar to ME/CFS. Here is some information on ME/CFS and also another discussion on the topic you may find helpful from what other members have shared on the condition and symptoms:

— Symptoms of ME/CFS: https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms.html
— Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

Since the doctors at Children's Hospital have not been successful diagnosing your son's condition, have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

@abrown2 Have you had a complete genetic scan completed on your son? They are getting into the do-able range for most folks now, thanks to Medicare and advanced technology. Dante Laboratories and Sequencing.com are a couple of good places. I have gone through many of the symptoms and procedures, and now I know almost my entire blood kin as wild type myeloma. Mine has ended up with some pretty serious stuff which every doctor except my birth doctor denied I could have. Get that whole genome done. It may save his life from disability and early death.

This guy had 30 ulcers in his stomach when he was 12. Max Kain or Kane was on the highwire. Com show cured it all with raw goat dairy milk and raw meat he thinks it was the natural enzymes.

Has he been checked for mycotoxins from mold?

Many of the symptoms you list are classic mold illness.