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Can't get a definitive diagnosis

Autoimmune Diseases | Last Active: Dec 4, 2021 | Replies (27)

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@johnbishop

Hello @linda2114, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your journey trying to get to the bottom of what's causing all of your symptoms. I can't imagine how difficult it has been for you along the way trying to get a diagnose and a treatment that helps. There is another discussion that you may want to view to see if it sounds familiar with what you have been through.

Chronic Illnesses of Millions of Women Left Untreated: https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

You mentioned seeing a lot of doctors and specialists. I don't know if it's an option for you but have you considered seeking help at a major teaching hospital or health facility like Mayo Clinic which is known for it's multidisciplinary team approach to diagnosing patients? More info about Mayo Clinic's approach -- Mayo Clinic: multidisciplinary teamwork, physician-led governance, and patient-centered culture drive world-class health care: https://collections.nlm.nih.gov/catalog/nlm:nlmuid-101537958-pdf

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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Replies to "Hello @linda2114, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Thank you so much for your input. Unfortunately I don't live near a Mayo Clinic. I reached out to Johns Hopkins, but they asked me to pick a doctor and take a particular specialist for my particular autoimmune disease. I'm not sure what kind of autoimmune disorder I have. So I didn't really know how to respond. I'm not sure if it's a connective tissue disorder, or another disease