Any tips to help recovery for a COVID Long-Hauler?

I'm a long-hauler myself, and it's been the hardest thing I've ever gone through, -and I went through cancer treatment and a stem-cell transplant 4 yrs ago. I got Covid-19 in mid-March of this year. I was fully vaccinated at the time, as I'm a medical lab technologist and work at a hospital. My 2nd Moderna vaccine shot was late Jan. (As a health care worker, I don't want to discourage anyone from getting the vaccine, but I'm one of the unfortunate 5.9%, I guess.) My husband came down with Covid-19 first as he was not vaccinated, (he didn't fit the criteria to get vaccinated in Iowa at that time) and I was stunned to find I had contracted it a few days later.

My first symptoms were not terribly severe, -first I had sinus pain, sl sore throat and headaches, fever, dizziness, sm cough, and then the next week I had diarrhea. I thought I'd recovered and returned to work one evening only to discover I was still too dizzy and unwell to work. The worst symptoms for me came after the first 2 weeks of the illness, but I was never hospitalized. Horrible headaches (sinuses), light-headedness, fevers going up to 103, intestinal issues, and taste alterations. (Exaggerated taste, is what I'd call it. Everything tasted like it had too much salt, and I couldn't eat. Water tasted sweet. Fortunately, my taste issues have resolved.) I've lost 12 pounds as I was basically in bed with exhaustion, and ate very little for 2 months. I'm sure I lost muscle mass from lying around so much. Now I am up and around more, but currently have shortness of breath, (which started about 6 weeks ago), along with severe fatigue, continuing fevers, and an intermittent headache that can really incapacitate me.

I get exhausted so easily. Stairs are difficult to take, - I must pause and sit, or lie down after a flight. I used to exercise 4-5 days a week before this happened, and I am stunned to find I am not able to regain energy or strength. The slowness of my recovery has been very frustrating, and emotionally taxing. I can't really make plans to do anything, (or work) as I never know how I will feel on any given day. If I have a good day and actually accomplish things, it seems I pay for it for the next 2 days, and I have to continually rest. I wish there were a support group that wasn't on FB, as not everyone wants a FB account. (I am one of those people!) It has been so isolating, this illness, and many people just don't understand. If anyone knows of an on-line support group that isn't FB connected, I would love to know about it.

I just started PT for post covid recovery yesterday, and I'm hoping that will improve things. Also, I have a visit scheduled at Mayo this next week. The staff at Mayo have been wonderful to work with through e-visits, as locally, the doctors where I live just don't know enough about long covid. Thanks for letting me vent, but I suspect I've been too verbose. I guess I've given a long-haul comment! I certainly have a great deal of sympathy for other long-haulers out there!!

I'm a long-hauler myself, and it's been the hardest thing I've ever gone through, -and I went through cancer treatment and a stem-cell transplant 4 yrs ago. I got Covid-19 in mid-March of this year. I was fully vaccinated at the time, as I'm a medical lab technologist and work at a hospital. My 2nd Moderna vaccine shot was late Jan. (As a health care worker, I don't want to discourage anyone from getting the vaccine, but I'm one of the unfortunate 5.9%, I guess.) My husband came down with Covid-19 first as he was not vaccinated, (he didn't fit the criteria to get vaccinated in Iowa at that time) and I was stunned to find I had contracted it a few days later.

My first symptoms were not terribly severe, -first I had sinus pain, sl sore throat and headaches, fever, dizziness, sm cough, and then the next week I had diarrhea. I thought I'd recovered and returned to work one evening only to discover I was still too dizzy and unwell to work. The worst symptoms for me came after the first 2 weeks of the illness, but I was never hospitalized. Horrible headaches (sinuses), light-headedness, fevers going up to 103, intestinal issues, and taste alterations. (Exaggerated taste, is what I'd call it. Everything tasted like it had too much salt, and I couldn't eat. Water tasted sweet. Fortunately, my taste issues have resolved.) I've lost 12 pounds as I was basically in bed with exhaustion, and ate very little for 2 months. I'm sure I lost muscle mass from lying around so much. Now I am up and around more, but currently have shortness of breath, (which started about 6 weeks ago), along with severe fatigue, continuing fevers, and an intermittent headache that can really incapacitate me.

I get exhausted so easily. Stairs are difficult to take, - I must pause and sit, or lie down after a flight. I used to exercise 4-5 days a week before this happened, and I am stunned to find I am not able to regain energy or strength. The slowness of my recovery has been very frustrating, and emotionally taxing. I can't really make plans to do anything, (or work) as I never know how I will feel on any given day. If I have a good day and actually accomplish things, it seems I pay for it for the next 2 days, and I have to continually rest. I wish there were a support group that wasn't on FB, as not everyone wants a FB account. (I am one of those people!) It has been so isolating, this illness, and many people just don't understand. If anyone knows of an on-line support group that isn't FB connected, I would love to know about it.

I just started PT for post covid recovery yesterday, and I'm hoping that will improve things. Also, I have a visit scheduled at Mayo this next week. The staff at Mayo have been wonderful to work with through e-visits, as locally, the doctors where I live just don't know enough about long covid. Thanks for letting me vent, but I suspect I've been too verbose. I guess I've given a long-haul comment! I certainly have a great deal of sympathy for other long-haulers out there!!

I'm a long-hauler myself, and it's been the hardest thing I've ever gone through, -and I went through cancer treatment and a stem-cell transplant 4 yrs ago. I got Covid-19 in mid-March of this year. I was fully vaccinated at the time, as I'm a medical lab technologist and work at a hospital. My 2nd Moderna vaccine shot was late Jan. (As a health care worker, I don't want to discourage anyone from getting the vaccine, but I'm one of the unfortunate 5.9%, I guess.) My husband came down with Covid-19 first as he was not vaccinated, (he didn't fit the criteria to get vaccinated in Iowa at that time) and I was stunned to find I had contracted it a few days later.

My first symptoms were not terribly severe, -first I had sinus pain, sl sore throat and headaches, fever, dizziness, sm cough, and then the next week I had diarrhea. I thought I'd recovered and returned to work one evening only to discover I was still too dizzy and unwell to work. The worst symptoms for me came after the first 2 weeks of the illness, but I was never hospitalized. Horrible headaches (sinuses), light-headedness, fevers going up to 103, intestinal issues, and taste alterations. (Exaggerated taste, is what I'd call it. Everything tasted like it had too much salt, and I couldn't eat. Water tasted sweet. Fortunately, my taste issues have resolved.) I've lost 12 pounds as I was basically in bed with exhaustion, and ate very little for 2 months. I'm sure I lost muscle mass from lying around so much. Now I am up and around more, but currently have shortness of breath, (which started about 6 weeks ago), along with severe fatigue, continuing fevers, and an intermittent headache that can really incapacitate me.

I get exhausted so easily. Stairs are difficult to take, - I must pause and sit, or lie down after a flight. I used to exercise 4-5 days a week before this happened, and I am stunned to find I am not able to regain energy or strength. The slowness of my recovery has been very frustrating, and emotionally taxing. I can't really make plans to do anything, (or work) as I never know how I will feel on any given day. If I have a good day and actually accomplish things, it seems I pay for it for the next 2 days, and I have to continually rest. I wish there were a support group that wasn't on FB, as not everyone wants a FB account. (I am one of those people!) It has been so isolating, this illness, and many people just don't understand. If anyone knows of an on-line support group that isn't FB connected, I would love to know about it.

I just started PT for post covid recovery yesterday, and I'm hoping that will improve things. Also, I have a visit scheduled at Mayo this next week. The staff at Mayo have been wonderful to work with through e-visits, as locally, the doctors where I live just don't know enough about long covid. Thanks for letting me vent, but I suspect I've been too verbose. I guess I've given a long-haul comment! I certainly have a great deal of sympathy for other long-haulers out there!!

Your story is exactly like my story, only I am a long-hauler from Mono, which I contracted in October, 2019. I have not been well since, and no doctors have any suggestions or help for me. I can no longer work or live a normal life. I have terrible headaches, dizziness, nausea, extreme fatigue, and I lost 15 pounds (not good in my case.) Many days I lay in bed not really alive and not quite dead. No one really believes I'm sick because I look normal most days. I understand perfectly what you are saying, but doctors also don't seem to want to connect the dots between COVID long-haulers and other virus long-haulers. We ALL need help, and some have been suffering for years and decades. I am sick of being told that if I just had a positive attitude I would get well. That is such nonsense. This is a real condition that needs much more attention and research. There are probably millions of us suffering and yet we are ignored or pushed aside or worse - ridiculed. It's isolating and heart breaking. 21 months and counting.....

My husband came down with Covid in December of 2019 when he was teaching some students from out of the country. I came down with it in February 2020.
My sense of taste has not fully returned. Sense of smell not normal either yet. I suffer from late in the day spells of heavy fatigue.
All I can tell you about is self care and what my very wise doctor told me. Not enough time has passed to know yet what the long term effects will be but making a point of resting when you are feeling tired is very important. He told me that pushing yourself too hard can result in some symptoms appearing again.
Mine were extreme fatigue, low grade fever and congestion deep in my lungs. I am 73 and recovered at home.
I do believe in natural remedies to enhance ones health and that’s why my doctor is an osteopathic doctor. I feel that so little is known about Covid-19 still that a good book on self healing might be a good thing to look into. I have several.
I have had great luck with vitamin D3. 5,000 mg a day. I was tested and my levels were extremely low. It is said that D3 offers some protection from a bad case of Covid.
Maybe this can help.
Since this thread sounds like it is taking a turn towards arguments I am exiting this website.

My husband came down with Covid in December of 2019 when he was teaching some students from out of the country. I came down with it in February 2020.
My sense of taste has not fully returned. Sense of smell not normal either yet. I suffer from late in the day spells of heavy fatigue.
All I can tell you about is self care and what my very wise doctor told me. Not enough time has passed to know yet what the long term effects will be but making a point of resting when you are feeling tired is very important. He told me that pushing yourself too hard can result in some symptoms appearing again.
Mine were extreme fatigue, low grade fever and congestion deep in my lungs. I am 73 and recovered at home.
I do believe in natural remedies to enhance ones health and that’s why my doctor is an osteopathic doctor. I feel that so little is known about Covid-19 still that a good book on self healing might be a good thing to look into. I have several.
I have had great luck with vitamin D3. 5,000 mg a day. I was tested and my levels were extremely low. It is said that D3 offers some protection from a bad case of Covid.
Maybe this can help.
Since this thread sounds like it is taking a turn towards arguments I am exiting this website.