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Neuropathy Pain at Night: What helps?

Neuropathy | Last Active: Apr 3 9:48am | Replies (225)

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@poseymint

I have been diagnosed with Sjogrens/Lupus autoimmune disorders in 2017. Around the same time I began to have a prickly neuropathy all over head-to-toe. It feels like mosquito bites sometimes stings, the pain signals fire off one at a time but can be anywhere on my skin, even in my mouth and throat. It flares up at night but not every night, just a few days at a time then calms down. My rheumatologist originally thought it to be a symptom of Primary Sjogrens Syndrome. I tried Lyrica 75mg but it made me feel tipsy like after 1 beer. I was overly friendly, nothing bothered me and my driving was impaired- I shouldn't have been driving. Quit Lyrica after one dose.

I started seeing a neurologist. He was also interested in my migraine auras and dizziness which he thought to be vestibular migraine activity. He began to believe after a while that my prickly neuropathy was also migraine related. He mentioned Central Sensitivity. In my understanding of it, the brain stem gets over stimulated and amplifies the signals coming in from the rest of the body, so a normal signal feels like a pain signal. My doctor explained that some people (like myself) are sensitive to light, sound, stress. Children who were car sick and couldn't do carnival rides (motion sensitive) are often the ones with migraines as adults. That was me.
The goal of treatment has been to try to calm everything down, slow down and reduce the stress, sleep, drink water. Also I had to get off of caffeine- that has helped so much with the dizziness. For the neuropathy, I started taking Alpha Lipoic Acid 600, got it on Amazon. Started at 1200mg but it gave me too much gastric distress. 600mg works for me. I was in a bad flare up of neuropathy when I began taking it one year ago. I haven't had any problems since. Good luck finding your answers everyone!

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Replies to "I have been diagnosed with Sjogrens/Lupus autoimmune disorders in 2017. Around the same time I began..."

Hello @poseymint, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience and what has helped you. You might also be interested in the following discussion:

Central Sensitization - please share your stories: https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/

Do you mind sharing what you were searching for when you found Connect?