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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Jan 19 10:15pm | Replies (9354)Comment receiving replies
Dear All, I apologize for not connecting with you sooner but I have been very ill. I was diagnosed with Pseudomonas Aeruginosa, Klebsiella and Serratia bacterias. I have essentially been sleeping or with whatever small energy reserves I have had .. dealing with the red tape of insurance and Mayo Clinic. It has been hell on wheels to be honest .. really a horrible experience for a sick person to have to go through. I FINALLY have an appointment on Wednesday for a test dose of Tobramycin at Mayo Clinic Rochester MN after my local doctor (nicely .. positive it is due to fear of malpractice) refused to do the test dose. The 28 days of Cipro 2x per day failed to help me so the next step is the Tobramycin. Please forgive my absence and know that I will be back on Connect as my health allows .. but it just hit me like a ton of bricks and sleep is all my body wanted. Please take care of each other until I am back .. and watch for newcomers .. you know what it was like. Hugs to all! Katherine
Replies to "Dear All, I apologize for not connecting with you sooner but I have been very ill...."
@katemn, Katherine, I am sending you prayers.
Rosemary
Katherine, I hope you are feeling better and the Mayo is taking good care of you! I really appreciate all that you do for our little MAC forum! Take care of keep us posted when you are up to it! Barb
katemn,,,,,,still thinking of you and hoping each day you feel a tiny bit better .....that all the financial medical issues are working out....and that your husband is also doing ok.....again...prayers and love as you have always told us are coming your way in mountains
terrid
<br><br><br><br><br>In mountains Katherine!<br> <br><br>
Katherine, i was suprised to read how quickly you have become more ill. Yor. Your news about being so weak breaks my heart. My prayers for you, best wishes and hope you are a bit since you last wrote.
New medications can really help but they can give us those darn side effects, im so sorry. Please let me know if you are suffering from tendon pains that may be making you weak. I had a similar problem you might remember, with taking otezla, a similar reaction to those who experience on cipro and floroquinalone type antibiotics. I was able to get better, slowly but surely and will be praying you get thru this soon.
There is a really great support group on Facebook if you want me to recommend.
Julie
@katemn Katherine, take care of yourself and get plenty of rest. I can so understand the debilitating fatigue, I went through that in the last month and a half prior to transplant. I could barely sit at the computer.
Get plenty of rest and get good medical advice at Mayo, of course you will there. I don't know about these local doctors, they make me wish I lived much closer to my transplant center, MGH in Boston, but having to allow a two hour span to get there during the day is a bit far to go for a PCP.
JK
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<br><br><br><br><br>Ditto from me Katherine. <br> <br><br>