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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@ahtaylor

Here are some things I have found helpful in my visits:
1. If you have not already - Download the Mayo Clinic app - it is very useful for your appointment schedule as well as test results later. There is a patient guide for your appointments that will tell you everything you need to know for preparation (i.e. whether to fast, when/what you can eat/drink, restrictions, etc)
2. If you are coming to the Rochester, MN clinic there are several hotels that connect directly to the clinic - if you are seeking convenience and ease of getting around these are good places to stay
3. Don't be afraid to ask for directions/help - I have found everyone to be very helpful and accommodating 🙂

Here are some things I have found helpful in managing hypoglycemia:
1. Of course, always carrying glucose tablets and glucagon with me
2. I also wear a CGM, which over time has becoming very beneficial in knowing my patterns and what is likely to lead to hypoglycemia. My husband and my children (17 and 20) get alerts on their phones if I have an episode so they can check on me. My husband also has my blood sugar readings on his phone.
3. Low carb diet works the best for me for diet control of hypoglycemia

I hope you will have a great experience and get the answers you need. If you have specific questions about the visit or managing hypoglycemia, please don't hesitate to reach out. Always happy to help!! Best wishes!!

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Replies to "Here are some things I have found helpful in my visits: 1. If you have not..."

ahtaylor.........could you tell me what hotels you find are the easiest for getting to the clinic via subway or skywalk?
Thanks
Steph

This is a stellar post @ahtaylor! That’s information one just can’t get anywhere else.