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Neuropathy Pain at Night: What helps?

Neuropathy | Last Active: Apr 3 9:48am | Replies (225)

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@janstar61

I have what I call constant burning toothachey pain in my legs and feet. It is as if I have 3rd degree burns on my legs, and I put tight stockings on over it. My pain is not intermittent. It is there 24/7, idiopathic SFN. Sometimes feels like I am getting stung by thousands of bees over and over again. I was originally on a higher dose of pregabalin and it just wasn't keeping me sane. My neurologist finally wrote a Butran's opioid low dose patch for me three years ago and it changed my life. I have not had to increase my medication and have been stable with a level of 3 pain for the past 3 years. I can sleep thru the night and function in life---- to a point. Everyone talks about addiction, but if there is no cure for this horrible disease, how would they expect us to come off of all this stuff anyway??

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Replies to "I have what I call constant burning toothachey pain in my legs and feet. It is..."

I agree with you. Do what works. Opioid or not. I'm 73 so not too worried about what it takes to make me comfortable. I have less years ahead of me so my choices can be expanded.
Pregabalin works for me, but as my disease progresses I may be needing different meds. Quality of life is important. Kudos to you and to your doctor. Find joy in your life now!