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DiscussionNeuropathy Pain at Night: What helps?
Neuropathy | Last Active: Nov 23 6:55pm | Replies (229)Comment receiving replies
Replies to "I would like to discuss this with people who have it"
I have what I call constant burning toothachey pain in my legs and feet. It is as if I have 3rd degree burns on my legs, and I put tight stockings on over it. My pain is not intermittent. It is there 24/7, idiopathic SFN. Sometimes feels like I am getting stung by thousands of bees over and over again. I was originally on a higher dose of pregabalin and it just wasn't keeping me sane. My neurologist finally wrote a Butran's opioid low dose patch for me three years ago and it changed my life. I have not had to increase my medication and have been stable with a level of 3 pain for the past 3 years. I can sleep thru the night and function in life---- to a point. Everyone talks about addiction, but if there is no cure for this horrible disease, how would they expect us to come off of all this stuff anyway??
I take Gabapentin 300mg at night, as reclining is the only time my neuropathy occurs. Lower legs only and not in my feet. Days are perfect, and at bedtime Gaba stops the pain, burning tingling etc. and I get my 8 hours! I have recently started B12, B1 Benfotiamine, B6 Pyridoxal 5 Phosfate, R Lipoic Acid, and folate with quatrafolic, all daily.I see some improvement after just a few months. We shall see. I stopped Amlodipine as there may be some causal PN factor. My bp is remaining normal!!!!!!.
Forgot!!! I came off my Amlodipine very very very gradually from an already low dose for many years.
This is very painful and has just recently been added to the pain in my feet and hands