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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Good MAC Doctor?
Posted by @chinasmom in MAC & Bronchiectasis, 2 hours ago
I have been searching for either an infectious disease doctor or a pulmonary doctor in the St .Louis Missouri area to treat MAC. It's exhausting work. I currently have pulmonary doctor with a prescription pad and an infectious disease student.
Please help if you know of a good one.
Becky
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@chinasmom Becky, I am going to move your Post to the Main MAC page .. hoping you might get more answers there. Yikes it must be SO frustrating to have that kind of experience with your doctor! "an infectious disease student" .. is that at a teaching hospital? .. and no luck just googling doctors in the area? Hope someone jumps in with some help! Hugs! Katherine
Replies to "Good MAC Doctor? Posted by @chinasmom in MAC & Bronchiectasis, 2 hours ago I have been..."
Boomer, excellent idea .. I have added it to my File Cabinet .. thank you! Hugs! Katherine
@chinasmom....I have been going to a pulmonologist in St. Louis for the past two years. His name is Dr. Castro, he is at Barnes Jewish Hospital. He apparently is a "world renown" pulmonologist, and he sees many MAC patients. The other doctors that work with are probably pretty good also, this is a teaching hospital. Please let me know if you have any other questions.
What part of St. Louis do you live in? It's so nice to be able to connect with someone nearby. 🙂
@beatitnow .. Amy thank you for jumping in with this helpful information .. great for our MAC pages for anyone living in the area! Hugs to both of you! Katherine
Dr. Adam Anderson M>D. Assistant Prof of Medicine, Division of Pulmonary and Critical Care Medicine at Washington University in St. Louis School of Medicine is my MAI Dr. His phone is 314 454 8763 and address is 4523 Clayton Ave. St. Louis, Mo. 63110. To schedule an appointment use 314 454 38917. His nurse is Anna Ellis at 314 273 1457. I was just diagnosed in Jan and been on the 3 meds since Jan 20th 2017. Also, Dr. Anderson ordered me a Smart Vest which I believe has helped a lot. Go back to him on April 28th to start all the routine testing MAI patients get. Will post what all he orders after I see him. If he doesn't order vision/hearing etc I will be asking him for them. Know he's doing kidney and liver as he told me that.
I live in Godfrey, Il which is about 40 min north of the Arch in downtown St. Louis. We live right on the Mississippi River close to Alton, Il. Where do you live??
@becky33 I'm in pevely, Missouri about the same distance south of the arch.
Becky
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@chinasmom Use this link: https://www.ntminfo.org/patients/physician-referral-list move down the page to Missouri and start your search!