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Primary Orthostatic Tremor

Brain & Nervous System | Last Active: Jul 29, 2023 | Replies (29)

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@franella2

I just visited my neurologist yesterday, and although he agrees I have OT (which I researched and found myself) he prescribed Physical Therapy AGAIN. I've been to at least 4 places for PT (at my own suggestion) and gave up after weeks of therapy. He does not seem to understand that when I visit him on a good day, that doesn't mean I don't have bad days. Some days I feel like my feet are glued to the floor. I have other things to deal with like arthritis, especially in my feet, It's discouraging and I feel sorry for you, but use walkers, and electric chairs, and do the best you can. Good luck. Mayo is doing deep brain stimulation now. That might be a possibility for you. And there's a mobility disorder in Gainesville, FL, that also does brain surgery.

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Replies to "I just visited my neurologist yesterday, and although he agrees I have OT (which I researched..."

Hello @franella2, Welcome to Connect. Thank you for sharing your experience with orthostatic tremors. It really helps when members looking for information and answers can find others with the same or similar symptoms and learn what has helped them. You posted in an older discussion which I don't think has any active members.

You sound like you have had good success in dealing with OT and share some good suggestions. Do you mind sharing what you were searching for when you found Connect?