Heartfelt thanks for all the sharing and good advice here. The PA has put me on a course of Flagyl (again) which seems to help some. I have been given Xifaxan in the past and it has helped, but the price darn near puts it out of reach. I know from experience that benefits of antibiotics are limited but I will take whatever relief I can get. I have correlated a few foods--just generally--with worsening symptoms but haven't kept a food diary yet. Too much fat, or uncooked vegetables or fruit can put me in a tailspin. But the whole thing is so quirky anyway.

I have wondered about adhesions and I don't know if any of the numerous scans would have shown them. I take it they can be hard to image with scans ?

I am also trying a few of the non-pharmaceutical antibacterials such as oregano, garlic etc. Too early to tell there. The doc wants to place stents in my pancreas. This comes with substantial risk of full blown acute pancreatitis so I have declined this.

Jim