Hi! My regular dr wasn't worried when my platelets were high for 4 years, just told me to take a baby aspirin every day. My counts went 485/520/540/585/618/ and now have been 638 for a year. I went maybe once a year to a hematologist/oncologist anyway for high iron/hereditary hemochromatosis so I asked him what he thought. He decided it was time to run some genetic mutation tests and also some tests to rule out conditions like rheumatoid arthritis. FYI - make sure your dr gets prior auth for these tests bc mine did not and I owed over $2k for them... All these tests came back negative, which was a relief but my platelets continued to rise so he ordered a bone marrow biopsy this January. The results showed abnormal platelets but no fibrosis or cancer. The radiologist who examined the sample asked my hemo if he'd done mutation tests and it turns out he forgot one! She ran it, and it came back positive for CALR mutation type 1. It was crushing bc I had done all my Google research and I thought it was a death sentence. But I saw an MPN specialist and he put my mind at ease, and actually told me NOT to take a daily aspirin. He said the gym/lifting weights is my medicine for now and he would go off my symptoms (which I have minimal symptoms). Anyway, yes - If I were you I would seek out a local hemotologist/oncologist (don't freak out about the oncology part) and be your own advocate - tell them you want tests run to rule out things (but get prior auth first!!!) It could be that your periods are so heavy that you've become anemic and your platelets can react to that - that would be a good outcome! Good luck and prayers to you!

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