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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "I have MAI for a while & so was taken off my biological meds for my..."
@boomerexpert, thanks for jumping in to help @fransav who is so much pain .. such a tough spot to be in and not many who have the knowledge you do .. again .. thank you! Katherine
Of course, my pleasure! Why we're here...
@fransav Yes I have advice. I have RA...you must be on a medication to manage your inflammation and pain; I too cannot use a biologic so must revert to older generation treatments. I'm on Kenalog 40mg injection (quarterly) and Naproxyn 500mg (enteric coated) as needed (usually every 3-4 days). I've begun using CBD oil 500 mg strength about 30 mgs/daily - it's helped greatly to reduce my need for the meds. Feel free to contact me via private message if you want more info. I understand the disappointment surrounding ineligibility for the better treatment but others work...perhaps not as well, but they manage the pain sufficiently.