Aching legs from Small Fiber Neuropathy

I am way past topicals. My legs skin feels like I have 3rd degree burns all over them. Third degree burns with tight nylon stockings pulled over them. I also have fibromyalgia. I am on both Lyrica and an opioid patch. That is the only thing that keeps me sane.

Good evening @dck. Thanks for sharing on connect. I also have achy, heavy legs in the morning. I do find that an Aveeno Bath is soothing for my entire body. I love walking and do some stretchy yoga when my cranky knee permits it.

I am a little concerned about your CBD topical. I have been using medical cannabis for about 7 years. I have never heard of a 500/25 combination of THC and CBD. Are you sure? That is 20 to 1. THC to CBD. As far as I can go is a 1:3 CBD to THC. Please check for me so I don't worry about you.

May you be free of suffering and the causes of suffering.
Chris

Chris, I checked the cream and it is as I described. The manufacturer is Proofly. I am located in Canada. I agree that it is an unusually high mix and, in fact, the exact product is not presently available on the manufacturer's web site. I have been told that because the product is a topical cream, there is no possibility that the THC will have a hallucianic effect. I did use a 50-50 mix before. That experience was positive but I wanted to see if this product produced a better/worse effect.

Have you had an ultrasound for venous insufficiency? The heavy aching legs is a main symptom. See a vein specialist for a diagnosis.

I have similar symptoms along with ice cold feet. Erggggg. My Neurologist diagnosed me with Progressive Sensory Motor Axonal Neuropathy. A fancy tile for a terribly limiting condition. I've gone from being a long distance cyclist to a weak walker. Tough to accept. Distraction helps, along with doing as much exercise as I can handle. I had constant leg cramps which resolved with me going to dance & weight classes daily. The name of the game is keeping rx to a minimum as each drug has a cost. My Pain Mgt doc implanted a Spinal Cord Stimulator which helps a lot. Maybe something for you to try?

Yes, I have the symptoms. It is unrelenting. I am having a caudal injection under general anesthesia tomorrow. Praying for some relief.

I'll be interested to know how you fare with the Caudal as my doc will be giving me injections in a few weeks. Wishing you the best.

I meant to say that I have "the same symptoms". Thanks so much. We are headed to the surgery center now.

Do you mind telling me more about the opioid patch? How long does it last, what is the mg?

Thank you

Hi Rachel.
I’m truly sorry that you have to suffer with all these bizarre sensations in your legs. I experience similar symptoms 24 seven I have numbness tingling and a feeling like they’re spiders crawling up and down my legs. Every morning I wake up and it feels like a truck hit me and my legs are so sore and so stiff it’s hard for me to move and stand up. My legs feel like lead and extremely heavy.. I also have the heaviness and soreness all over the body including the torso, my arms, my legs, my hands and my back so the soreness is consistent and it feels like I have the flu without a fever every day.. I don’t like to take pain medication however I have found that low-dose naltrexone minus the vivid dreams have been really helpful and sometimes I just take Tylenol which isn’t effective for nerve pain but it does help me sleep. Of course, I experience, relentless, fatigue, due to the stiffness , numbness and the tingling and pain. Hope you find effective relief!

Eileen