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Recently Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jun 13, 2021 | Replies (24)

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@johnbishop

Hello @resage, I would like to add my welcome to Connect along with @artscaping and other members. I have idiopathic small fiber peripheral neuropathy. I think you have already started on what I consider an important step after being diagnosed with neuropathy - learn as much as you can about your condition. What initially helped me was reading the experiences and learning what others have shared. I posted my neuropathy story earlier in this discussion here – https://connect.mayoclinic.org/comment/310341/ You may want to read through the discussion to learn what other members have shared helps them.

The second thing that helped me was finding credible health information on neuropathy and not just the "neuropathy cure ads" you see when searching the Internet. There is a discussion you might find helpful – How do you identify trustworthy health information?: https://connect.mayoclinic.org/discussion/how-do-you-identify-trustworthy-health-information/ — ​My two go to websites are:
— Neuropathy Commons: https://neuropathycommons.org/
— The Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

I have no medical training or background but think that there is no cure for neuropathy and it all boils down to living as well as you can with neuropathy by using any method that gives you relief from your neuropathy symptoms. You might find this page on the Foundation for Peripheral Neuropathy as a good start at being more informed: https://www.foundationforpn.org/living-well/.

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Replies to "Hello @resage, I would like to add my welcome to Connect along with @artscaping and other..."

This is so helpful. Thank you very much!