Thank you for your encouraging words. And, congratulations on your two year transplant anniversary! I hope you can continue to be well…with no more surgeries! I have been able to reduce Tac from 8 mg to 6 mg, but increased Mycophenolate to 2000 mg/day.

My transplant doctor doesn’t believe my increasing tremors and neuropathy are due to meds, however. So, I’m now seeing a neurologist and rheumatologist who believe my symptoms are due to Sjogren’s and possibly some other autoimmune response. Like you I’m dedicated to exercising, and I’m eating well and doing everything to keep my new liver healthy. I’ve also got pretty severe osteoporosis, so am now on meds for that.

I have my next appointment with my transplant team in July. I’m hoping I have more insights on my autoimmune issues by them so I can discuss potential impacts on my liver and treatments that don’t interfere with our anti rejection meds. I’m managing pain currently with Gabapentin. It seems like a lot of other meds recommended for neuropathy interact with Tacrolimus.