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Transplant anti-rejection medications. What's your advice?
Transplants | Last Active: 22 hours ago | Replies (371)Comment receiving replies
I'm a Liver and Kidney transplant patient (June 2019) I also had Carotid artery surgery (Aug 2019) and a double by-pass (Oct 2020). I'm a diabetic and I Have Neuropathy Before Transplant and ot's still the same. I use Gabapentin. I also had the tremors, even fell - after I Tapered off Prednisone and my Tac and Cellcept were reduced (after 6 months) - I improved significantly. I started Pool Walking as soon as possible. Now I'm on 1000mg Cellcept and 5 mg Tac daily. Keep going - things will improve and find some good neuropathy management. Also keep asking questions of your transplant team, they are Great and will be a source for you.
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Thank you for your encouraging words. And, congratulations on your two year transplant anniversary! I hope you can continue to be well…with no more surgeries! I have been able to reduce Tac from 8 mg to 6 mg, but increased Mycophenolate to 2000 mg/day.
My transplant doctor doesn’t believe my increasing tremors and neuropathy are due to meds, however. So, I’m now seeing a neurologist and rheumatologist who believe my symptoms are due to Sjogren’s and possibly some other autoimmune response. Like you I’m dedicated to exercising, and I’m eating well and doing everything to keep my new liver healthy. I’ve also got pretty severe osteoporosis, so am now on meds for that.
I have my next appointment with my transplant team in July. I’m hoping I have more insights on my autoimmune issues by them so I can discuss potential impacts on my liver and treatments that don’t interfere with our anti rejection meds. I’m managing pain currently with Gabapentin. It seems like a lot of other meds recommended for neuropathy interact with Tacrolimus.