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hi hopeful, My blood work was always within range however I suffered from Extreme fatigue and weakness, diabetes like symptoms even including neuropathy -a gallium 68 scan confirmed a small insulinoma which would explain a lot of my issues- I dread the thought of flying to the East Coast due to my condition however I will check into it thank you for the information- I have also heard of John Hopkins that deals with an insulinoma are you familiar with this hospital?
Replies to "hi hopeful, My blood work was always within range however I suffered from Extreme fatigue and..."
Kappie, I wanted to clarify that Mayo Clinic has 3 locations: Rochester, Minnesota where @ahtaylor sought treatment as well as in Phoenix, Arizona and Jacksonville, Florida. Perhaps the MN or AZ locations would be more convenient for you. You can always call the appointment office to find out more about our specialists and expertise in treating insulinoma. Here's the contact information for all 3 campuses: http://mayocl.in/1mtmR63
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Hello @kapple
I'm not familiar with John Hopkin's work with insulinoma, however, I do hear good reports about Mayo Clinic's doctors.
If you are interested in an appointment at Mayo Clinic in Minnesota or another location, here is the website that will give you appointment information.
https://www.mayoclinic.org/appointments
They also have a concierge service that will help out-of-town patients with travel/lodging information.
Will you keep in touch and let me know how you are doing?