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Replies to "Hello @kapple, I would first like to welcome you to Mayo Clinic Connect. I'm glad that..."
Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)
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Hello @kapple, I would first like to welcome you to Mayo Clinic Connect. I'm glad that you found this online support network where patients give and receive support.
Finding a specialist who treats insulinoma is difficult. You are right that it is rare and you definitely need to see someone who specializes in this disorder. Two Connect members who have recently posted are @preeti and @ahtaylor. If you read their posts you will see that they have both travelled to Mayo Clinic in Rochester, MN for their treatment.
You posted that you were recently diagnosed with a small insulinoma. What symptoms were you having that led your doctor to look into this?
Replies to "Hello @kapple, I would first like to welcome you to Mayo Clinic Connect. I'm glad that..."
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Teresa,
Thanks for including me in the response.
@kapple - I am more than happy to share my experience. In the short story version - I have been a patient at Mayo Clinic for multiple recurrent insulinomas since 2017. I have a fantastic endocrinologist at Mayo who does specialize in insulinomas. His name is Dr. Adrian Vella. I am so very happy to be a patient at Mayo and know I am in great hands. My case is a bit complicated in that I had 2 insulinomas removed in 2015 in NC and 9 more removed at Mayo in 2017. I have 2 more that are inoperable so I continue to be under Dr. Vella's care for medical management of the insulinomas. I feel blessed to have been connected with Dr. Vella and Mayo Clinic. If there are any questions I can answer, please let me know.