Hello @kapple, I would first like to welcome you to Mayo Clinic Connect. I'm glad that you found this online support network where patients give and receive support.

Finding a specialist who treats insulinoma is difficult. You are right that it is rare and you definitely need to see someone who specializes in this disorder. Two Connect members who have recently posted are @preeti and @ahtaylor. If you read their posts you will see that they have both travelled to Mayo Clinic in Rochester, MN for their treatment.

You posted that you were recently diagnosed with a small insulinoma. What symptoms were you having that led your doctor to look into this?