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End stage liver failure: Mother-in-law wants to keep fighting
Caregivers | Last Active: Jun 4, 2021 | Replies (6)Comment receiving replies
@dallains, Welcome to Mayo Clinic Connect where patients and caregivers share their experiences, find support and exchange information with others. I am sorry that your first entry is about your mother in law's end stage liver failure. I am a liver and kidney recipient, so I can understand how difficult this must me for you to be witnessing.
When my mom was in Hospice Care, we (her children) were provided with resources and support so that we could spend quality time with her during her illness. Hospice care provides services by a team of health care professionals who maximize comfort for a person who is terminally ill by reducing pain and addressing physical, psychological, social and spiritual needs. To help families, hospice care also provides counseling, respite care and practical support.
Have you had an opportunity to talk with anyone on her care team? Are you able to visit her or speak with her? How is her son (your husband?) handling this?
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It's been a long road and she was stable a few months ago and then got covid which took out the remainder of her liver that was working. She's been in and out of hospitals locally and due to visitor restrictions it was very difficult for her to not see her family and she was not getting the proper care she needed. She just wanted to be home with her family which is where hospice came in. Now that she's had a week with her family she's questioning if she's ready to give up or not. We have an appt with mayo that we scheduled a month ago while things were still ok but it's a 5 hour drive that we aren't sure she can handle but also want her to have a fighting chance. It is very difficult to navigate