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Long QT Syndrome: Want to connect with others

Heart Rhythm Conditions | Last Active: Sep 3 11:48am | Replies (55)

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@johnbishop

Hello @ashtonnorris, I would like to add my welcome to Connect along with @amandaburnett and other members. My daughter has Long QT Syndrome also. I shared her experience in an earlier post in this discussion here - https://connect.mayoclinic.org/comment/206413/. Her doctor did a Mayo Clinic Podcast that you may help you learn a little more about the condition.

Is your son currently being treated for LQTS?

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Replies to "Hello @ashtonnorris, I would like to add my welcome to Connect along with @amandaburnett and other..."

Not yet. We’re being monitored and avoiding prolonging QT drugs. We have the ANK2 mutation and all I know is it causes cardiac arrhythmias and LQTS 4.