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← Return to Prolia treatment for osteoporosis: What is your experience?
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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)Comment receiving replies
@artscaping Thank you, Chris! I am glad to hear you will be on Prolia too - gives me someone to compare notes with! All that information on the Facebook page is mind boggling. Some people on that Facebook page even said talking to Amgen is no use, that they are not going to say anything negative to discourage users because after all, they are selling the drug and don’t want to lose sales.
My physician has started me on Prolia and I asked her if there is any alternative and she said no. I asked about going back to Actonel and she said that’s a bisphosphonate that I have been on already, and that can be taken for just five years, which I have, so I can’t go back on I do not have severe osteoporosis (just slight, at the base of my neck and top of my spine) but my doctor wants me on it just as a preventative.
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May I ask what are your t scores on all parts ? Since you took Actonel for 5 years, did it help? By how much? I took Actonel for 6-7 years and it helped to hold all numbers constant or improve a little except the femur neck. My ENDOs ( saw two) said Actonel doesn't work on femur neck only Prolia will. I learned that the reason it is hard to improve the density of femur neck is because it is hard for blood to go there so the drug doesn't go there as easy. I am not sure how Prolia works to bypass that difficulty.
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Good for you. I need a Prolia buddy. It is a shame that the FB folks can get a bit over the line. That is why we have moderators. They monitor and make sure you are receiving valid information and the folks who tell you about it are truthful. And we have community guidelines about the way we treat others.
I understand why they might think the manufacturer just wants to cover up a side effect to sell a product. Hopefully, when you talk to the researchers and licensed medical facilitators, you have a better chance of getting some valid information.
May you be content and medically healthy.
Chris