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did I have a TIA?

Stroke & Cerebrovascular Diseases | Last Active: Jun 4, 2023 | Replies (12)

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@moms34eds

Hi ...I am new here...mom of 34 year old that has had EDS since high school....fast forward, daughter's years have been filled with constant medical surprises and searches in finding answers to an obvious...however, most recently, last couple of months, my daughter who is presently in a rehab facility due to paralysis on left side after what medical thinks s a ng out ANY INFORMATION POSSIBLE that will assist me in dealing with the ignorance of medical, and them thinking that she is too young to have ANYTHING medically wrong with her. It' s been a "medical merry-go-round" full of great frustrations and angst. If ANYONE has anything that might shed some light on this, or advice of medical directions, I would so appreciate it. My daughter is actually and LPN and right now her entire life has been become one big lack of needed medical attention from medical and staffing that have no clue as to wat EDS even is. THANK YOU IN advance for any knowledge in regards to this as well as any direction in which I may pursue. Thank you again,

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Replies to "Hi ...I am new here...mom of 34 year old that has had EDS since high school....fast..."

Hello @moms34eds and welcome to Mayo Clinic Connect. I can sense the frustration in your post and can empathize with feeling like no one understands. I am wondering if you might like to join one of the discussions specifically on EDS here to connect with members who may be able to provide their support?

- Ehlers Danlos Syndrome: Can't get diagnosed:
https://connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-1/
- Ehlers Danlos Syndrome (EDS) & HSD, calling all types!:
https://connect.mayoclinic.org/discussion/edshsd-calling-all-types/
- Ehlers Danlos Syndrome - Who is the best doctor to see?:
https://connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis-1/