COVID vaccines and neuropathy
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
You said this is all from your 1st shot, I take it you didn’t y your second shot? As much as I wanted it, I haven’t been able to Bring myself to get my second one. Still Too much burning pain from the first. I hope you are feeling much better by now!
my life has not been the same - developed erythromelalgia - still waiting for neurology appointment
Sorry for everything you are dealing with. Still curious to know if you got your second Pfizer or did you do J&J. Hopefully you didn’t get increased pain from it. Feel well soon!
both Moderna
I'm close to your age and have neuropathy that was getting worse in recent months. At least that happened BEFORE I had my Covid vaccination or I would surely have assumed a cause and effect. The only problem I had from my first Pfizer shot was a sore arm for a day. For the second, the soreness lasted a week. The pain wasn't that bad and was felt only when I moved my arm. So I, for one, am grateful to have had the vaccinations. Best wishes to everyone.
How are you doing now? I’m 52 and had same experience. I’m a dermatologist and my symptoms appear to be small fiber neuropathy. Extensive testing negative. Mine is worsening since began 4 days after my 2nd Pfizer. Shaky legs and losing temperature and pin prick sensation hands and feet. Fatigue. Muscles overly tired. If also lost some weight over last 3 months for no apparent reason. Eyes now becoming dry and not sweating on hands. There has been a case report of a 57yo female. That doc said he’s had multiple other physicians contact him about similar cases.
@bowerstx so sorry you’re experiencing this. I still have symptoms at almost 6 months out now, although overall slightly better. My issues now are mainly burning in my feet and slight weakness to my right lower leg. I have mild twitching in my right foot at times. Occasionally I have a stinging sensation all over my body. What you’re describing is a little worse that anything I went through, as I never actually lost any sensation. It’s almost as though my sensations have been increased instead of decreased. Has your doc tried any meds to ease symptoms? Mine prescribed Cymbalta, however I wasn’t able to take it due to nausea. I’m not a big medication person anyway, unless I know exactly why I’m taking it. I have another neuro appt in July and I’m looking forward to hearing if he’s had any more cases of this. Best wishes to you and I will be following your progress.
No, the neuropathy I experience was the same before and after both my shots. The vaccine did not make mine worse in any way. I received my shots in the beginning of March and have not had any lasting side effects. I got both the Moderna vaccines.
I am having severe burning pain also, now 2 months out. Did you get your second dose? Did it make it worse?
I did Moderna and yes I got my second shot