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Don't Know What to Do Next: COVID & Lung Conditions

Lung Health | Last Active: Jun 9, 2021 | Replies (96)

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@cmi

Pedrito, although I am a native Floridian, I haven’t lived there in over 15 years so cannot help you on logistics…but you are 100% correct and on the right track to find a multidisciplinary clinic/hospital setting that will explore other than cardiac and lung. Teaching Hospitals that are tied to good medical Universities are a good start. Mayo Clinic fits that description, Cleveland Clinic is big in Florida, University of Miami has an amazing and renown assortment of specialties.

I empathize with your frustration….although my illness is MAC…my doctors became puzzled because my lungs & cardiac workups are all good, clean, amazing. In spite of my healthy lungs housing 2 species of Mycobacterium Avium Complex…I have the pulmonary functions of a teenager. My cardiac system also passed just fine considering normal age (64+). So the doctors checked further…and explored my GI tract. Unpleasant 3 days of diagnostic work…barium swallow , esophageal fluoro, manometry, impedance testing and EGD…they found “silent reflux” which was causing a constant throat clearing and irritating cough (non productive) plus voice change, plus tissue changes in my esophagus around my sphincter muscle. RXs will adress these. Plus doctor dilated my esophagus which return my voice to what it use to be.

Have hope…you must be a loving and intelligent husband to stay so closely involved in the medical dynamic of your wife. Keep searching and asking…be assertive and clear in your goals. This forum is also rich in experience so keep asking the group for help.

Stay well.
Regina

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Replies to "Pedrito, although I am a native Floridian, I haven’t lived there in over 15 years so..."

Thank you so much, Regina. My wife and I will celebrate our 50th wedding anniversary next year and I am doing all in my power to return her to where she was a couple of years ago. The frustrating part is when - after all kind of tests - nothing is found and the doctors literally tell you that there is nothing else they can do. And, of course, there is something because her condition persists. I am exploring the possibility of making an appointment with an Internal Medicine doctor who, after an initial thorough evaluation, will referred her to an specialist and go from there. The idea behind is to try to find a doctor who works with a multidisciplinary group so through their knowledge, hopefully, the cause of the issue can be found. Again, many thanks for your nice and comforting words. I also hope you do well. Take care.