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Restless Leg Syndrome (RLS) and Opioids

Sleep Health | Last Active: Oct 4, 2022 | Replies (47)

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@juniemoon1

Hi! I started the methadone 5 days ago. The first 3 nights were somewhat better. Where as before I couldn't get to sleep until 8:00-ish in the morning, I was able to get to sleep around 3 am. Then the night before last it was 5:30. Last night I went to bed at 10:30 and Slept Through The Night! I truly cannot remember the last time that happened. I woke up with a whole new outlook on life!

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Replies to "Hi! I started the methadone 5 days ago. The first 3 nights were somewhat better. Where..."

@juniemoon1 How great to be able to sleep! I didn't realize that I had RLS until a few months ago when I asked my neurologist if he had noticed the involuntary movements of my fingers, and everywhere else.

At about the same time I was starting Duloxetine for neuropathy pain, and when I was up to 90mg, I began having major twitching. It was happening every second, sometimes multiple movements at once. I understand why you couldn't sleep if your symptoms were like mine. My wife suggested that it could be the increased dosage, so I went back down to 60mg, and the twitching subsided. That was not a fun experience. After a few weeks, instead of the 90mg at bedtime, I started taking 60 at bedtime and 30 in the morning. Two weeks ago I sent the neurologist a message letting him know that the pain is increasing and moving up my legs, so now he has me taking yet another 30mg in the afternoon.

I've been taking Clonazepam for anxiety for 15 years, and along the way I found that I didn't kick and punch in my sleep. It's the one medication my wife doesn't want me to stop taking.

With the increased anxiety surrounding covid19, I started taking the full dosage that I'm prescribed. I've always taken only 1mg a day unless I needed a second one. Since moving up to 2mg, I've noticed that my involuntary movements have calmed down. It's always irritated my wife.

How good it was that you found such a good neurologist. Being heard is a big deal. I've always appreciated that my pcp asks if there's anything else I want to talk about before he ends the appointment. I had an appointment with a neurologist several years ago, and he told me more about peripheral polyneuropathy than 3 others had over the course of 5 years. Bummer that he retired the next week. I hope that you continue to be so pleased with the new doctor.

Jim