← Return to Restless Leg Syndrome (RLS) and Opioids

Discussion

Restless Leg Syndrome (RLS) and Opioids

Sleep Health | Last Active: Oct 4, 2022 | Replies (47)

Comment receiving replies
@juniemoon1

Hello. I've recently joined and this is my 1st post. I hope I'm doing it right! I had an appointment a few days ago with my new neurologist (the 4th one I've seen!). For the first time in years, I finally have hope that my RLS will be under control, I'll be able to sleep, and I can have my life back.

My husband and I met with this wonderful new doctor for an HOUR! For the first time in years, I felt like I was being heard. I had done a LOT of research before the appointment and had decided that I was going to ask for methadone. I wasn't even sure how this new doctor felt about the use of opiates for RLS. But, before we were halfway through the appointment, he suggested the methadone. I thought I was going to cry! Of course, I have no idea if this will be "the" answer for me, but I have Hope.

Anyone else have experience with opiates for RLS?

Jump to this post


Replies to "Hello. I've recently joined and this is my 1st post. I hope I'm doing it right!..."

Hi @juniemoon1, welcome. You posted perfectly. I moved your message to this existing discussion about restless leg syndrome where members are talking about RLS and opiates, including methadone. I moved your message here so you can connect with members like @engelee @engelee @rlsscotty @josita19 and others.

Junie, what a relief for you to feel heard and understood. When will you start treatment with methadone?

I had RLS & my internet at Mayo prescribed 500mg Vitamin C & 25 mg slow release Iron. After many years of going to ER for terrible RLS and getting Ativan . I haven’t had an episode for 6 yrs—go figure.