Yeah - it’s non stop doctors. Waiting and waiting. Unusual problems are so frustrating.

So - I have compression of the GP Nerve - cranial nerve IX - unlike Eagle Syndrome - it’s compressed on the right side in the brain by the posterior inferior cerebellar artery. I also have signs of the internal jugular vein being compressed and wonder if there is more to the story in regards to glossopharangeal neuralgia. I have been on Gaba for unrelated nerve pain for a a couple of years - which is one of the treatments for GPN so thus may have been preventing or muting the pain.

Also my gastro doc had me do a motility study to check for esophageal spasms as my pain will radiate to my sternum, I meet the criteria for jackhammer esophagus. If I did not have the face ear neck and throat pain - this could explain things. I wonder if GPN triggers the esophagus to spasm. Still having test done.

I have developed an eye turn in the last month which is interesting as A pituitary lesion was also seen in my MRI. Every test result leads to more rests and more confusion.

And still I suffer with horrible pain. Sigh.