She is taking methrotraxate,celebrex,hydroxochloroquin,lyflomatin. My spelling is bad. She just keeps getting uncontrollable chills, fevers,diarrhea and since she started meds for myobacterium she's coughing more and phlengain with tissue little blood.

Yes ! My name is Carmen which is also my mom's name.
I'm just worried with her side effects since she started the meds. She has been getting awful side effects and Dr said to keep taking them till Tuesday when we see him and maybe talk about different treatment but if she develops side effects again to take her to er. Well the side effects are daily I can't be going to er daily to lower her temp. And she's weaker and tired and there's way more coughing and now phlengain has tissue w blood streaks. Diarrhea that's making her incontinent. She has chills that she can't stop shaking. Muscle aches . She's bad. And I can't keep seeing hherin pain. These side effects aren't just normal nausea . I'm just terrified for her .

Thx... Awesome my friend is a pharmacist so this should be easy... 🙂

@ilgrp4e, Carmen, I am NOT a doctor .. but you are her daughter and are watching her with all these side effects .. having a doctor tell you just to keep taking her daily to an ER and WAIT until you see him on Tuesday!! Ok, this is just ME .. NOT a doctor .. BUT if I was sitting in your shoes .. I would STOP the MAC antibiotics NOW .. UNTIL you see the doctor on Tuesday.

THEN I would google this doctor's name .. find out his bio. Find out IF he is an Infectious Disease doctor. IF he is .. on Tuesday ask: How many MAC patients have you treated in the past 12 months? WHY? Because you want your Mom to be with a doctor who KNOWS what MAC is all about .. knowledgeable! Also because YOU have to be your Mom's BEST Advocate .. she is too sick to do it for herself! AND I am concerned about this doctor's leaving her in misery and telling you just to go to an ER.

Carmen .. this good advice came from one of our Members who also had side effects. Print this out and take it to the doctor on Tuesday .. REMEMBER .. YOU are in the driver's seat .. YOU are the employer .. the doctor is YOUR EMPLOYEE!!

"Had side effects. Then my pulmonologist took me off all meds to make sure nothing else was going on. My pulmonologist suggested that I re-start the meds one at a time. I went on first one for two weeks (pulmonologist suggested that it be for two weeks); then a second for two weeks; and then a third for two weeks."

Carmen, good luck .. keep coming back with any questions .. we will be here for you! Hugs to both of you! Katherine

Carmen, I would take her to the ER and if they don't admit her. Take her off the meds and do as Kate advised with the doctor. Also get some fluids in her Pedialyte or Gatorade, and small soft food. Get some chewable peptobismol and anti diarrhea. Im really concerned that you were told to wait. Error on the side of caution and take her to get help today. Let us know how it goes.
Becky

@chinasmom, Becky, thank you jumping in .. that is REALLY good advice! Hugs to you! Katherine

You are misspelling the last, so would be great to get me correct name/spelling; know the others. I think she needs a new Rheumatologist as well. I believe she is over-medicated so no surprise adding the strong MAC drugs is problematic. Are the litany of drugs she's taking for her RA managing it for her? Also, Celebrex cannot be taken over a long period as can cause damage to the stomach lining. Please get her to the University to see both Rheumy and ID docs...Hopefully they'll straighten out the drug mess she seems to be in. Agree with post re: prophylactics to ease her symptoms once she's d/c'd the MAC drugs until you get her to a good doc.

@boomerexpert, Boomer, thank you for jumping in since you are so familiar with getting her to a good Rheumatologist .. but could I suggest that you begin your post with the @ilgrp4e, Carmen .. since we have so many members/posts that our various posts do not get posted directly under a new member's original post? New members are not as familiar with just how our Forum works. Again, thank you for jumping in with good advice that our MAC members might not be familiar with. Katherine

Will do...sorry I didn't think of that. If she gets notification via email of new posts, hopefully she'll get'em in the meantime.

Boomer, not to worry .. since I included @ilgrp4e, Carmen in my post to you .. I think she will follow the posts .. good job .. thank you! Katherine